Adam is one of around 2000 Australians living with motor neurone disease (MND)
Adam Regal was diagnosed with MND in 2013 at the age of 30. As his nerves die, everyday tasks are becoming increasingly difficult to perform. Because of MND, Adam will soon be unable to speak, swallow or breathe.
Adam asks that next time you complete an everyday task, take a moment to imagine how valuable it is to you. Then Put a Price on it and make a donation to END MND.
> Read Adam’s story and the impact of MND on his family
Adam was born and bred in Kiama, NSW. He married his high school sweetheart, Kylie and together they have two young children.
Adam is the face of a new national campaign that reveals the reality of living with MND. We take a glimpse into his life before MND – playing with his children on the Slip ‘n Slide and teaching his son to ride a bike. Being a hands-on dad was at the crux of Adam’s life, but MND has taken that away.
In the 16 months since Adam was diagnosed with MND, he has lost strength in his legs. He relies on crutches for anything but the shortest of walks and uses an electric wheelchair to keep up with his children on the sports field. He also contends with constant twitching of his muscles and painful cramps.
“MND is such a brutal disease for which there’s no treatment or cure, yet. Research is the only tool we have to understand and overcome MND,” says Adam.
“At the moment MND is affecting just my legs, but in time I’ll be unable to complete the simplest tasks like hugging my kids or dressing myself.”
Adam is a carpenter by trade and until recently worked at the Port Botany Container Terminal. Finishing up from work is just one of the changes that Adam is coming to terms with. MND has also brought changes to the Regal family’s lifestyle and future plans and prompted them to reevaluate their perspective.
“Living with MND makes you appreciate each day and amplifies the precious moments. We’re pretty good at focusing on the positives.”
Adam is only too aware of the impact of MND after watching his father and uncle die from the disease. Although MND can be hereditary, 90% of cases occur for no known reason. MND can strike anyone, young or old of any nationality or demographic. Read more about familial (hereditary) MND.
The Regal family is a passionate advocate and supporter of MND research, with the “Regal Regiment” raising $35,000 for MND research. Adam has also given biological samples to assist in a research project that strives to better understand MND.
“It may be too late for me, but I’ll do everything I can so future generations never have to go through this. Research is the hope for a future without MND.”
You can make a difference to all people impacted by the disease – donate to END MND.
Ask your friends to Put a Price on it
Encourage your friends, family and colleagues to support MND research by sending them an email, and sharing the Put a Price on it campaign on Facebook and Twitter:
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Are you from the media?
If you would like to produce a story about Adam Regal, MND or MND research, please contact Rachel Rizk: firstname.lastname@example.org, 0414 219 015. Check our Media hub for the latest news, read our media release or download our MND Background Information Fact Sheet, which provides a snapshot about MND.
The faces behind the Put a Price on it campaign
The driving force behind this national campaign is Bernice Atlee who was diagnosed with MND a year ago.
Following her diagnosis Bernice, couldn’t ignore the fact that MND was experiencing a lack of public awareness and most importantly funding for research.
Determined to do something to help improve the situation, Bernice managed to bring together a group of professionals, who not only had the expertise to produce a campaign, but also came with outstanding compassion and dedication to make that change and bring hope to all people with MND.
> Read more about Bernice and the team behind the Put a Price on it campaign.
My name is Bernice Atlee. I’m the mother of 4 and grandmother of 4.
My husband, Rob and I have always led a healthy life – exercising and eating well. Due to Rob’s job, we have been living in Asia for the past 20 years.
Around June 2013 I noticed weakness in my tongue and a slight slur in my speech. A few months later I found I was having trouble running. By March 2014 after experiencing a roller coaster ride and many invasive tests, I was finally diagnosed with MND.
We were of course devastated!!!!
Once diagnosed it became very apparent to Rob and I, how little the public was aware of this horrific disease and how little government and public funding was attained by MND Australia.
Once diagnosed it became very apparent to Rob and I, how little the public was aware of this horrific disease and of the great need for more funding to understand MND and work towards finding an effective treatment.
I felt we needed to join together and make one hell of a noise so people would sit up and take notice. We set out to create a cohesive communication package for a national MND awareness and fundraising campaign during MND week (3 – 9 May) and MND Global Day (21 June). This included television and radio commercials and enlisting the support of our national corporate sponsor, Harvey Norman. Harvey Norman’s staff have been heavily involved in the organisation and implementation of the Put a Price on it campaign.
We were fortunate to draw together an amazing and generous team of experts in the fields of branding, film, advertising, fundraising, MND research and executives from MND Australia.
My sincere thank you to “The Team”, some of whom had not heard of MND months ago. The sincere, sensitive and devoted way you have all approached this challenge, was truly inspiring, and I am so grateful to each and every one of you, and I’m proud to call you my friends.
A special thanks must go to Adam Regal, who agreed to be the subject our commercial. Adam, who has MND and a young family, has worked tirelessly to raise money for MND research.
Meet the team of in-kind supporters
Macquarie University Motor Neurone Disease Research Centre
... and very special thanks to
Ian Kennedy OAM