News and media

Discover the latest news about motor neurone disease (MND) advocacy and research or visit our one-stop-shop for media, Media hub.

Got a story to share? Tell us about how MND has impacted your life.

News List

RSS Feed RSS Icon
MNDRIA contributes to research that has enabled first Australian ba...
MNDRIA contributes to research that has enabled first Australian baby to access emerging treatment for spinal muscular atrophy

Rachel Rizk | 23/03/2017

MNDRIA's Beryl Bayley Postdoctoral Fellow, Dr Michelle Farrar from the University of NSW, is spearheading Australian research into an emerging treatment called nusinersen that has been shown in clinical trials to improve motor development in babies and children with spinal muscular atrophy (SMA), a disease of the motor neurones that most often affects infants. Several Australian infants have participated in these pivotal clinical trials.

Default news teaser image
Launch of Neurological Alliance Australia's joint position paper on NDIS planning

Rachel Rizk | 22/03/2017

Today a joint position paper will be launched by the Neurological Alliance Australia at Parliament House, Canberra to call for equitable and effective support within the NDIS for people with progressive neurodegenerative diseases.

MNDRIA announces Susie Harris Travel Fellowship 2017 and MNDRIA PhD...
MNDRIA announces Susie Harris Travel Fellowship 2017 and MNDRIA PhD Scholarship Top Up Grant

Stephanie Williams | 7/03/2017

The MND Research Institute of Australia is pleased to announce the recipients of this year’s Susie Harris Travel Fellowship and MNDRIA PhD Scholarship Top Up Grant (2017 - 2019).

Default news teaser image
Novel drug PMX205 reduces MND symptoms and extends the life of mice in a new study supported by MNDRIA

Stephanie Williams | 6/03/2017

A study led by University of Queensland researchers Associate Professor Trent Woodruff and Dr John Lee has found a drug “PMX205” extends the life of mice that have a SOD1 mutation.

Default news teaser image
MNDRIA supports world-first discovery of urinary biomarker to track motor neurone disease

Stephanie Williams | 27/02/2017

Research supported by the MND Research Institute of Australia has led to the discovery of a new and simple test to monitor disease progression in people with MND and evaluate drugs under investigation in MND clinical trials.

Default news teaser image
Recipient of NHMRC/MNDRIA Postgraduate Scholarship announced

Stephanie Williams | 7/02/2017

The MND Research Institute of Australia is pleased to announce Camille Paynter as the recipient of a co-funded NHMRC/MND Research Institute of Australia Postgraduate Scholarship to start in 2017.

Default news teaser image
Overview of the International ALS/MND Meetings, Dublin 2016

Rachel Rizk | 17/01/2017

Chairwoman of the International Alliance of ALS/MND Associations and CEO of MND Australia, Carol Birks provides this comprehensive overview of the International ALS/MND Meetings held in Dublin last month.

NHMRC funding supports MND research to start in 2017
NHMRC funding supports MND research to start in 2017

Stephanie Williams | 22/12/2016

Congratulations to this year’s successful applicants in the annual National Health and Medical Research Council (NHMRC) grant funding round. More than $4 million has been awarded for motor neurone disease (MND) research. 

Default news teaser image
Applications are open for the Susie Harris Travel Fellowship and the MNDRIA PhD Scholarship Top-up Grant

Stephanie Williams | 22/12/2016

Applicants must be an Australian citizen or have permanent resident status. Applications close at 6 pm EST on Friday 27 January 2017.

Default news teaser image
Successful completion of phase II trial of arimoclomol in ALS patients with SOD1 mutation

Stephanie Williams | 13/12/2016

A phase II clinical trial led by Dr Michael Benatar from the University of Miami Miller School of Medicine has found a heat shock protein-based therapy shows potential for the treatment of ALS patients with mutations in the SOD1 gene.

 

Proud member of:

International Alliance of ALS/MND Associations

ACNC Registered Charity