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Discover the latest news about motor neurone disease (MND) advocacy and research or visit our one-stop-shop for media, Media hub.

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FDA approves edaravone to treat MND

Rachel Rizk | 18/05/2017

The US Food and Drugs Administration (FDA) has approved the drug edaravone for the treatment of MND. MND Australia has prepared some facts to explain what this approval means for people living with MND in Australia. Edaravone FAQs are now available for download.

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MND Australia response to Budget 2017 – 2018

Rachel Rizk | 16/05/2017

What does Budget 2017 – 2018 mean to people living with MND in Australia? MND Australia has prepared this response to the national Budget, which was handed down by the Treasurer on 9 May 2017.

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MND Australia newsletter – April 2017

Rachel Rizk | 27/04/2017

In this issue we provide an update of recent influencing efforts related to the National Disability Insurance Scheme (NDIS) and Aged Care.

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We're recruiting – Research Manager

Rachel Rizk | 6/04/2017

MND Australia has a part-time Research Manager position available for a highly motivated individual with a biomedical or related science degree, and strong oral and written communication skills.

MNDRIA contributes to research that has enabled first Australian ba...
MNDRIA contributes to research that has enabled first Australian baby to access emerging treatment for spinal muscular atrophy

Rachel Rizk | 23/03/2017

MNDRIA's Beryl Bayley Postdoctoral Fellow, Dr Michelle Farrar from the University of NSW, is spearheading Australian research into an emerging treatment called nusinersen that has been shown in clinical trials to improve motor development in babies and children with spinal muscular atrophy (SMA), a disease of the motor neurones that most often affects infants. Several Australian infants have participated in these pivotal clinical trials.

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Launch of Neurological Alliance Australia's joint position paper on NDIS planning

Rachel Rizk | 22/03/2017

Today a joint position paper will be launched by the Neurological Alliance Australia at Parliament House, Canberra to call for equitable and effective support within the NDIS for people with progressive neurodegenerative diseases.

MNDRIA announces Susie Harris Travel Fellowship 2017 and MNDRIA PhD...
MNDRIA announces Susie Harris Travel Fellowship 2017 and MNDRIA PhD Scholarship Top Up Grant

Stephanie Williams | 7/03/2017

The MND Research Institute of Australia is pleased to announce the recipients of this year’s Susie Harris Travel Fellowship and MNDRIA PhD Scholarship Top Up Grant (2017 - 2019).

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Novel drug PMX205 reduces MND symptoms and extends the life of mice in a new study supported by MNDRIA

Stephanie Williams | 6/03/2017

A study led by University of Queensland researchers Associate Professor Trent Woodruff and Dr John Lee has found a drug “PMX205” extends the life of mice that have a SOD1 mutation.

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MNDRIA supports world-first discovery of urinary biomarker to track motor neurone disease

Stephanie Williams | 27/02/2017

Research supported by the MND Research Institute of Australia has led to the discovery of a new and simple test to monitor disease progression in people with MND and evaluate drugs under investigation in MND clinical trials.

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Recipient of NHMRC/MNDRIA Postgraduate Scholarship announced

Stephanie Williams | 7/02/2017

The MND Research Institute of Australia is pleased to announce Camille Paynter as the recipient of a co-funded NHMRC/MND Research Institute of Australia Postgraduate Scholarship to start in 2017.

 

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